The Boy Who Can

Editora:

JSJ Publishing

Código:

491_9780992143602

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When Jacob Trossman was born with Pelizaeus-Merzbacher disease (PMD),a rare and incurable neurodegenerative disease, his prognosis was grim.The doctors warned his parents that he would never speak, sit or eatindependently. The medical professionals were not optimistic that Jacobwould have the ability to learn or to understand what was going on aroundhim. Part survival manual, part love story between parent and child, The BoyWho Can is a chronicle of a mothers refusal to accept the limitations placedon her son. Marcy White recounts the seemingly overwhelming strugglesand joyous rewards of parenting Jacob who engages everyone he meets withhis infectious smile and sparkling green eyes.An unbelievable story of a parents perseverance, creativity and courage in the faceof a childs life-threatening genetic disorder. The Boy Who Can touches on medicalethics, the care demands shouldered by families, research and advocacy, the inclusionof children with disabilities and how their siblings fare.Louise Kinross, BLOOM Editor, Holland Bloorview Kids Rehabilitation HospitalWritten from the heart, this book reveals the anguish, joy and ferocious mother lovein raising a child with complex care needs. Marcy Whites account is written withan authentic voice-it is both honest and inspirational. For anyone faced with theunexpected challenges that test the human spirit, this book provides an emotionalroadmap.Lisa Priest, author, Operating in the Dark: The Accountability Crisis in Canadas HealthCare System.

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