-
DEPARTAMENTOS
INTERESSE GERAL
INTERESSE GERAL 2
LIVROS TÉCNICOS
LIVROS TÉCNICOS 2
CATEGORIAS
- IMPORTADOS
The Fight for My Nephews Life with Spina Bifida
Cód:
491_9781665515436
De: R$ 0,00Por: R$ 123,97ou X de
When my nephew was diagnosed with Spina Bifida at birth in Nairobi, Kenya, his loving parents knew little to almost nothing about this mysterious ailment. This lack of the underlying condition made it difficult for them or other close family members to seek specialized care, rendering any early interventions out of question and dimmed his future treatments. Innocently, his parents assumed that the condition that he has would disappear or get treated with passing months or even years. Things did not improve and that led them to inform other family members, including myself, their beloved sister. Upon hearing that the boys health was not progressing as expected, I decided to visit Nairobi and made firsthand observations. I was convinced beyond doubt that moving Little Deng to the US would be best. The prospect that he could have face severe challenges, even death, was both tormenting and motivating. Thanks God that him and his father both flew into Salt Lake City, Utah, on December 22, 2014. His loving family, including grandmother, uncles and aunty were always ready to see his treatment through, with zeal and passion. Treatments meant conducting catheterization by inserting a small tube into his private area four times, every four hours per day, administrating medication twice per day for bladder control infection, watching for hydrocephalus - shunt malfunctions almost every day because it could lead to death if not properly caught on time, checking braces on his feet for any skin redness, adjusting walker and wheelchair, even carrying him around when he struggled, countless Emergency Room (RM) visits, long hours every six months visit to Spina Bifida Clinic, attending constant Physical and Occupation therapist twice per week, and performing bowl movement program every day, every evening. Little Deng is a blessing to me and our family. As a first-time caregiver, when Little Deng is out for school and other activities, I would be stressed and depressed throughou
Veja mais
